Family Voices National is a grass roots network of families and friends which advocates for health care services and provides information for families of children and youth with special health care needs: www.familyvoices.org
Family Village is a global community of disability-related resources: www.familyvillage.wisc.edu
DisabilityInfo.gov is the federal government's one-stop Web site for people with disabilities, their families, employers, veterans, workforce professionals and many others: http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500
The National Center for Cultural Competence's (NCCC) mission is increase the capacity of health and mental health programs to design, implement, and evaluate culturally and linguistically competent service delivery systems: www11.georgetown.edu/research/gucchd/nccc.
The Catalyst Center is a national center dedicated to improving health care insurance and financing for children and youth with special health care needs (CYSHCN):www.hdwg.org/catalyst.
Bright Futures for Families offers a variety of materials and resources developed specifically for families to complement the Bright Futures publications and materials used by health care professionals. Families want and need materials that have the same information used by their health care providers, written in a way that they can understand and easily refer back to when needed. Here is a link to their web-site and materials: www.brightfuturesforfamilies.org/materials.shtml.
The Center for Medical Home Improvement: http://www.medicalhomeimprovement.org/
Medical Home represents the standard of excellence for pediatric and adult primary care in the 21st Century. CMHI defines the medical home as a community-based primary care setting which provides and coordinates high quality, planned, family-centered health promotion, acute illness care, and chronic condition management - across the lifespan. Care in a medical home is rewarding for clinical teams to provide and satisfying for patients and families to receive.
National Center for Medical Home Implementation: http://www.medicalhomeinfo.org/about/
The National Center for Medical Home Implementation (NCMHI) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP). The NCMHI is housed in the AAP Division of Children with Special Needs.