Links to Other Helpful Information

Helping families and professionals connect with information and services for children with special health needs: Check out this resource here.

Bright Futures for Families

Bright Futures for Families is a national initiative for families and communities to promote and improve the health and well-being of children of all ages. We offer resources for families based on the award winning, federally supported Bright Futures initiative, developed through the support of public health, non-profit, and corporate organizations. 

 

To access the Bright Furtures publications:  http://www.brightfuturesforfamilies.org/home.shtml

Centers for Disease Control

Information for Parents:  www.cdc.gov/parents/infants/index.html

 

 National Center on Birth Defects and Developmental Disabilities is dedicated to helping people live to the fullest. Much of our work focuses on  protecting people who are especially vulnerable to health risks - babies, children, people with blood disorders, and people with disabilities:  www.cdc.gov/ncbddd/index.html

 

Information about children with special health care needs from the Center for Cultural Competence:  http://nccc.georgetown.edu/projects/cyshcn.html

 

Emergency Care for Children with Special Health Care Needs, from the American College of Emergency Physicians:  https://www.acep.org/Clinical---Practice-Management/Emergency-Information-Form-for-Children-With-Special-Health-Care-Needs/

 

 

Disability Specific Organizations

Attention Deficit Disorder, To identify an ADD group in your state or locality, contact either: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150, Landover, MD 20785, (301) 306-7070, (800) 233-4050(Voice mail to request information packet), Web: www.chadd.org

Attention Deficit Disorder Association (ADDA) P.O. Box 543, Pottstown, PA 19464-0543, (484) 945-2101, Web: www.add.org

Autism
Autism Society of Minnesota, 2380 Wycliff Street, Suite 102, St. Paul, MN 55114, (651) 647-1083, E-mail: info@ausm.org, Web: www.ausm.org

Blind/Visual Impairments
National Federation of the Blind of Minnesota, 100 E. 22nd Street, Minneapolis, MN 55404-2514, (612) 872-0100,
Web:
www.blindinc.org

American Foundation for the Blind - Midwest, 401 N. Michigan Avenue, Suite 350, Chicago, Il 60611, (312) 396-4420, Web: www.afb.org

American Council of the Blind of Minnesota, P.O. Box 7341 Minneapolis, MN 55407, (612) 730-8100, Web: www.acb.org/minnesota

Brain Injury
Brain Injury Association of Minnesota, 34 13th Avenue, NE, Suite B001, Minneapolis, MN 55413,(800) 669-6442(in MN), Web: www.braininjurymn.org

Cerebral PalsyUnited Cerebral Palsy of Minnesota: http://www.ucpmn.org/, and United Cerebral Palsy of Central Minnesota: http://www.ucpcentralmn.org/, CP Parent: http://www.cpparent.org/

Cystic Fibrosis:  Minnesota Department of Health web -site, other Resources: www.childrensmn.org/Services/CysticFibrosis/ www.med.umn.edu/peds/cfcenter/team/home.html

Diabetes:  Juvenile Diabetes Foundation MinnDakotas: www.jdrf.org/index.cfm?page_id=107171

Down Syndrome, Down Syndrome Association of Minnesota 656 Transfer Road, St. Paul, MN 55114, (651) 603-0720; (800) 511-3696, Web: www.dsamn.org

Epilepsy,
Epilepsy Foundation of Minnesota 1600 University Avenue West, Suite 205, St. Paul, MN 55104, (651) 287-2300; (800) 779-0777, Web: www.efmn.org

Food Allergy Support Group of Minnesota:  Empowers families affected by food allergies by providing support, education and a community to build personal connections: www.FoodAllergySupportMN.org. 

Fetal Alchol Syndrome: Minnesota Organization on Fetal Alcohol Syndrome (MOFAS),  http://www.mofas.org/, 1-866-90-MOFAS (66327)

Gastrointestinal Disorders The Oley Foundation provides information to families and individuals receiving nutrition via intravenous or G or J tube feeding:  http://www.oley.org/, other resources:  Short Bowel Syndrome Foundation: http://www.shortbowelfoundation.org/,  Crohns and Colitis Foundation: http://www.ccfa.org/, United Ostomy Associations of America, Inc.: http://www.uoaa.org/, 

Hearing Loss, Minnesota Hands and Voices: www.mnhandsandvoices.org, 709 University Avenue W, St. Paul, MN 55104-4804, mnhv@lifetrackresources.org, Voice:(651) 265-2435, Toll Free: 1-866-DHOHKID

Learning Disabilities,
Learning Disabilities Program - Children's Home Society & Family Service 2230 Como Avenue, St. Paul, MN 55108, (651) 222-0311; (800) 982-2303(in MN) Web: www.chsfs.org 

Learning Disabilities Association of Minnesota, 5354 Parkdale Drive, Suite 200 St. Louis Park, MN 55416, (952) 922-8374,Web: www.ldaminnesota.org

Mental Health,
Mental Health Association of Minnesota 2021 E. Hennepin Avenue, Suite 412, Minneapolis, MN 55413 (612) 331-6840,Web: www.mentalhealthmn.org

NAMI-Minnesota (National Alliance for the Mentally Ill), 800 Transfer Road, Suite 7A St. Paul, MN 55114, (651) 645-2948; (888) 473-0237, Web: http://www.namihelps.org/

Minnesota Association for Children's Mental Health, 165 Western Avenue, Suite 2 St. Paul, MN 55102, (651) 644-7333; (800) 528-4511,
Web: www.macmh.org

Speech and Hearing,
Minnesota Speech-Language-Hearing Association P.O. Box 26115, St. Louis Park, MN 55426, (952) 920-0787; (800) 344-8808, Web: www.msha.net

Spina Bifida Association of Minnesota, P.O. Box 29323 Brooklyn Center, MN 55429-0323, (651) 222-6395, Web:
http://mnsba.org/

Tourette Syndrome, Tourette Syndrome Association of Minnesota, Inc. Web: www.tsa-mn.org, Andrea Robinson: 612-481-8635

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