FRIDAY'S CHILD - FAMILY VOICES NATIONAL NEWSLETTER - In this months edition learn about partnering with youth and young adults with special health care needs and disabilities.
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Read the new edition of the Kid's As Self Advocates, (KASA) newsletter
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A Great Opportunity to be "In The Know" on State Policy!
Feeling out of the loop with what's happening at the State Capitol? Wondering how policies might affect people with developmental disabilities? Pick up the phone!
Every fourth Monday of the month, Arc members are invited to call in and listen to updates on state disability policy, state initiatives, and ways for you to be involved. Call 1.888.311.9051 and enter meeting code 193142#.
For questions or a copy of the agenda, contact meredithsalmi@arcgreatertwincities.org.
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LEARN ABOUT PERSONAL CARE ASSISTANCE (PCA)CHANGES FROM THE 2009 LEGISLATIVE SESSION
FREQUENTLY ASKED QUESTIONS FROM THE
MINNESOTA DISABILITY LAW CENTER: http://www.mylegalaid.org/mdlc/current-projects/pca-changes
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National Family Voices 2009 Annual Report, learn more about Family Voices National.
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SEASONAL FLU and H1N1 updates FOR PARENTS OF CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS
The Minnesota Department of Health has a web-site that contains a great deal of information about the flu: www.health.state.mn.us/divs/idepc/diseases/flu/index.html
The Flu Pandemic website (DHHS) has some guides for people with health conditions:
http://pandemicflu.gov/individualfamily/healthconditions/index.html
The American Academy of Pediatrics has a variety of fact sheets and detailed and helpful information for parents: http://www.aap.org/advocacy/releases/swineflu.htm
Some disease-specific groups are posting information on their web sites. The spina bifida association has a page on the vaccine and people with SB: http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.5384875/k.52B0/August_18_2009_CDC_Issues_Updated_Vaccination_Recommendations.htm
The CDC has information for patients with asthma: http://www.cdc.gov/h1n1flu/asthma.htm
Identifying and Overcoming Barriers to Improved Influenza Immunization Rates in this High-risk Population http://www.aafa.org/pdfs/Flu_Monograph_FINAL_2.pdf
Allergy and Asthma Network http://www.aanma.org/press-room/press-releases/090909-h1n1/
American Academy of Allergy, Asthma & Immunology http://www.aaaai.org/members/h1n1/newsupdates.aspMDA http://www.mda.org/H1N1/
Sesame Street has some fun videos for children and information for parents about preventing the spread of the flu and other health topics:
http://www.sesamestreet.org/parents/topics/health/flu
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